Kent, Surrey & Sussex Learning Disability Community of Practice

Exciting news!

There is real progress with the accessibility of the “My Healthcare Passport” participants are required to be involved in a  project with this innovative patient held health record system.

Interested – Read on!

As a result of East Kent Hospital University NHS Foundation Trust (EKHUFT) participative action research study – and the Co-researchers hard work – a new fillable PDF version of “My Healthcare Passport” is available for download at This means that it can be downloaded, typed into, saved and shared.

Along with this, EKHUFT have been working with an organisation called tap2tag who appeared on Dragon’s Den over the Christmas period.

 Tap2tag could have real benefits for safeguarding people with learning disabilities Healthcare Passports.  Therefore, EKHUFT are looking for 20-25 volunteers to test out the tap2tag system and the new Healthcare Passport.

If you are interested in participating please see the project planning meeting invite. Tap2Tag Project Invite 12-1-16

View original post 104 more words


Kent, Surrey & Sussex Learning Disability Community of Practice

The PCPLD Network is a voluntary organisation developed in 1998.  The national network brings together service providers, people with learning disabilities and carers to work together for the benefit of individuals with learning disabilities who have palliative care needs.   The ethos is that people with learning disabilities should receive the co-ordinated support needed to live their lives to the full, until the end of their life.    

If you would like to attend the next PCPLD Kent Branch meeting on 28th January 2015 it will be held in the  Training Room, at Pilgrims Hospice, Ashford, Hythe Road, Willesborough, TN24 0NE  

For further information please contact: or

To learn more go to  Tweet @PCPLDnetwork

meeting 15 poster

View original post

Kent, Surrey & Sussex Learning Disability Community of Practice


Date: Tuesday 1st December 2015
Time: 10:30am – 3pm. Registration and refreshments from 10am
Venue: Mercure London Bridge

Health Education Kent Surrey and Sussex (HEKSS) is undertaking a workforce development project for people working with clients and patients with intellectual disabilities. The aim is to create a sustainable and secure workforce supply, for people that have intellectual disabilities, who require support from and / or access to services across Kent, Surrey and Sussex.

HEKSS has commissioned Skills for Care to help facilitate some of this important work, and we would jointly like to invite you to attend a one day conference which will look at planning for the learning disabilities workforce across the full range of adult services including residential, supported living and specialist. Transformation, personalisation and the development of community based services are at the heart of quality. The learning disabilities workforce needs to have access to the right…

View original post 217 more words

Kent, Surrey & Sussex Learning Disability Community of Practice

Thanks to Rags at East Kent Hospitals for sharing the below flyer with the Community of Practice for the event with Ros Blackburn on 28th October. Feel free to book a place. You don’t need to book places.

Ros Blackburn

View original post

Each academic year the Tizard Centre hosts a series of research seminars. These lectures usually take place between 1700-1800hrs at the Kent Business School, University of Kent, CT2 7PE.

This year’s seminars:

Wednesday 28 October 2015 – Prof Glynis MurphyWhat happens to ex-offenders with learning disabilities after leaving prison”

Wednesday 25 November 2015 – Dr Nicola GroveSharing stories of personal experience: collaborating to create meanings”

Wednesday 24 February 2016 – Prof Ruth Northway & Colleagues “Looking into abuse: research by people with learning disabilities”

Details are available on the Tizard Centre website.

For information, the National Institute for Health and Care Excellence (NICE) is seeking to appoint members to the Guideline Committee for Models of service delivery for people with learning disabilities and behavior that challenges. The KCBN encourages members to apply. Information below:

Dear Colleague


RE: NICE committee to develop guidelines on social care: Service model for people with learning disabilities and behaviour that challenges


We are recruiting members for one of our Guideline Committees.


We are looking for both lay members (people using services, family members and carers, and members of the public and community or voluntary sector) and people with a professional or practitioner background in the topic.


If you or any of your colleagues would like to apply, there are more details on the NICE website. The deadline for applications is 03/09/15 at 17:00.


Further information and how to apply – general

Further information and how to apply – service users and carers

Further information and how to apply – service users and carers (easy read)


We would appreciate it if you could circulate this information widely in your organisation and to any other people or organisations who may be interested in this topic.


If you have any queries about Committee membership or the recruitment process, please contact Palida Teelucknavan –


Comment on draft scope


The draft scope for the NICE guideline on Service model for people with learning disabilities and behaviour that challenges is out for consultation and we would like to know what you think about it. The draft scope defines what aspects of care the guideline will cover and to whom it will apply.  

Comment on the consultation

Closing date: 12/08/15



Kent, Surrey & Sussex Learning Disability Community of Practice

As part of the University of Kent’s 50th anniversary celebrations, the Tizard Centre will be hosting a lecture followed by an informal reception on Saturday 5 September at 12 noon. This is being held in the new Templemen Library lecture theatre, University of Kent, Canterbury campus.

Dr Janet Carr, OBE. pioneering psychologist, will be giving a talk based on the findings of her 50 year research project of people with Down’s syndrome that became a lifelong commitment to changing attitudes. After half a century and at the age of 87, Janet Carr has just completed the world’s longest running research project in to people with Down’s syndrome. The longitudinal study began with 54 babies born in the year to November 1964 and living with their families in South-East England. Dr Carr’s aim was to establish the children’s educational needs using intelligence tests such as pattern-matching. The research, which began when…

View original post 57 more words

Kent, Surrey & Sussex Learning Disability Community of Practice

This year’s Conference was based on how we can all implement reasonable adjustments for people with learning disabilities in our work. The conference participants and the Community of Practice team found each of the presentations insightful, interesting and thought provoking. The audience participation and inclusion generated great debate and key questions for reflective thought.  Main focus with regards to barriers to ensuring services and people are well adjusted to meet the needs of these individuals.  There were lots of opportunities for networking which allowed all to address some key questions and barriers to ensure services and people are well adjusted to meet the needs of these individuals.   Delegates shared personal insights and experiences, while remembering that people with learning disabilities are no less human than anyone else.

All the presentations and and resources from the day are available on the conference page. Please click here

Professor Chris Hatton from The University of Lancaster was guest speaker and he opened the…

View original post 155 more words

The Kent Learning Disability Partnership Awards highlight the work we do in Kent and celebrate our unsung heroes.

Nominations will close at 5pm on Friday, 24th July 2015 and the awards will be presented on 13th October 2015 at County Hall.

There are a number of categories under which nominations can be made:

  1. Employer of a person with a learning disability
  2. Supported housing
  3. Supporting people with a learning disability (team or individual)
  4. Citizenship awards
  5. People’s award
  6. Helping people stay healthy

If you know of someone you think deserves this special recognition, do take a few minutes to fill in the easy nomination form.

Enter your email address to subscribe to this site and receive notifications of new posts by email.

Join 603 other followers

Follow KCBN on Twitter